The specialist haemoglobinopathy (sickle cell disease or thalassaemia major) nurse works with the North West London Haemoglobinopathy Network.
They support children and their families in managing their health condition in the community.
They do this by:
- providing regular home visits
- offering individual school healthcare plans
- training schools and primary care staff
How to refer to this service
Referrals to the service are accepted from:
- the national newborn screening programme – NHS
- parents and carers
- primary care and other health professionals
For further advice and guidance contact the specialist haemoglobinopathy nurse:
- Email: clcht.sicklethal@nhs.net
Useful links
Further information can be obtained from Sickle Cell Society.