For information, advice and guidance, see:

The Family Hub

If you want to update your record or be added to the directory, please view Guidance for FIS and LO service providers

Search the directory

Search the family information service provider directory for services, organisations and activities near you.

Showing 11 - 12 of 12 results

SWAN UK (syndromes without a name)

SWAN UK supports families affected by a syndrome without a name – a genetic condition so rare it often remains undiagnosed. We work with UK based fami...

Translate this website